Wishesland Kuching

Hello! My name is Aafwan Nayl Bin Nasrulridza. I was born on 2nd of April 2021. I have a brother twin and a big sister. I was diagnosed by doctor as Mixed Spastic Cerebral Palsy at the age of 1 year 4 months old. When I was 2 months old, my mother notice that my development is slight slower than my brother twin and I was also always crying. Thus my parent brought me to the clinic. Doctor was check and found out that I got tongue tie which it restrict the movement of my tongue and my weight is smaller than my brother twin. My mother also noticed the circumference of my forehead is smaller than my brother twin. Thus my mother request the doctor to do CT Brain.

After do detailed investigate, doctor found out that one of my brain side is not functioning well, because of this problem, it will affected my muscle and brain growth well. My parents didn’t give up on me. They still ask advice from doctor if there is any place for me to go for therapy. And the doctor was suggest to my parent to go to Wishesland. On Friday noon around mid of October 2022, my father call to Wishesland and ask for appointment to assess my condition. So my parent brought me to the Wishesland and there I met Teachers of Wishesland. They are really supportive and teach my parent a lot about the do’s and don’ts about Cerebral Palsy. From here, my parent and I get a New Chapter of Life. Wishesland have save my life, this is me around 6 months of life when first visiting Wishesland.

At the age of 6 months, I still can’t roll, unable to lift up my head and neck, and unable to sit independently. I need full assistance in my daily routine in order for me to do all the activity. At Wishesland, I have attends therapy sessions twice a week. After 4 months later, I can turn myself to side and side. My mother was so happy to see my progression. My teacher teaches me a lot during therapy. Every session therapy, both my teacher and Mama will guide me on how to roll side to side. Besides, I also good in creeping as I always push my body forward. My Mama called me Commando as I always love to do creeping activity. My message to others is nothing is impossible if we never ever to try it by ourself.

Aafwan Nayl Bin Nasrulridza

Success Story from Wishesland Ambassador

Aafwan Nayl Bin Nasrulridza

Success Story from Wishesland Ambassador

Aafwan Nayl Bin Nasrulridza

Success Story from Wishesland Ambassador

Hello. My name is Aaron Kuoh Lian Shen. I was born on 1st of July 2018. I am 4 years old. I have older brother. I am premature baby with 34 weeks. I was admitted at NICU (Neonatal intensive care Unit) for 13 days after I was born. When I was born, I weighed only 2.335kg. At the age of 2 years, my parent was curious why am I still cannot walk like a normal kid. I just love to crawl and want my mom to carry me. So they decided to bring me to the doctor for further investigate. After all the reassessment step by the doctor done, I was diagnosed Global Delay Development. (Failure to Thrive) and Cerebral Palsy at the age of 3 years old. My parent was so concern about me thus they ask the advice from the doctor what they should do so that I can walk like others kid. The doctor was suggest my parent to go for the therapy or school play so that I can interact with others.

After meeting with doctor, my parent direct go to the places that the doctor suggest but unfortunately other places didn’t accept me because I was diagnosed as Cerebral Palsy. So that place has suggest my parent to go to Wishesland because that is the place for Cerebral Palsy to do for therapy. Without wasting time, my parent direct when to Wishesland. There I met Teachers of Wishesland. They are really welcoming me and family. Teacher was reassessing me eventhough I was crying and tell my parents that I have potential to walk and can grow up like others children. Teachers was giving a big hope towards me and my family. They really wanted me can walk and be independent like others kids.

When I first visit to Wishesland on April 2022 for therapy, I started to cry and wanted to ask my mom to bring me back home. After a few sessions with Teacher (1 month later), my emotion has been improved. I have reduced in crying. I can manage myself’s feeling. I also enjoy do exercise with Teacher. They know how to cheer me up. My problem is that I was scared to walk by myself. I have lost my confidence. I am also weak in balancing during walking. Teacher teaches me how to walk by holding my hand and they will slowly let me walk independently. With the help of teacher and my parents, it takes almost 2 months for me to be able to walk with good balancing. Now I believe with support from my teachers and family, I can walk like others. My next goals is I want to balance myself during running and jump.

Aaron Kuoh Lian Shen

Success Story from Wishesland Ambassador

Aaron Kuoh Lian Shen

Success Story from Wishesland Ambassador

Aaron Kuoh Lian Shen

Success Story from Wishesland Ambassador

Hi I am Brandon.. I joined Wishesland since 22 November 2017, at 10months old (2017). At this 10 month old, I still delay in my head and trunk control. I was diagnosed as “unknown Cp”.and and in my development stage. My problem was muscle floppy (poor muscle strength), poor head and trunk control, speech delay, poor in hand functioning, poor in awareness and dislike carry or touching by stranger. It’s a very challenge when I only can look to the side without turning my head. Just like my friend, I keep crying while go through my therapy session. I was refused to do all the movement that my teacher showing to me. I was curious why my parents and teachers keep cheering me to lift up my head.

And everytime I can lift up my head even just for a few second,they was very happy and clap hand . Now I know the reason why, I can see everyone happy face when I achieve my ability and can see what toys that teachers showing to me for encourage me to keep my head up and looking forward no matter in what position I do either prone or sitting. After a few week I attend the therapy session, I show up my improvement in my muscle strength and head control. I can lift up and turn my head to look around. I also can touch my mouth and face.

After 8 months of training, I achieve a lot of improvement when I can control my head and trunk well. Start with sitting activity with full support until I can support by myself and need more balance training. With repetitive training, on Dec 2020 i can sit with less support and improve in my motor functioning skill. Now i also can talk and communicate easily and in progress to standing and walk independently. I wish one day I will be independent and achieve my dream. Thank you to my parents, teachers and everyone who always give me a support and encourage me. Thank you, I love You.

Brandon

Success Story from Wishesland Ambassador

Brandon

Success Story from Wishesland Ambassador

Brandon

Success Story from Wishesland Ambassador

Hi.. I am Chai Men You, I was born on 13th of August 2017 in Singapore. Im a premature baby with 32 weeks old. I stayed in NICU for 10 days and support by CPAP (continuous positive airway pressure) and other days in Special Care before I can be discharge back to Malaysia at 1 September 2017. As my parents was employee at Singapore ,I was taking care by my grandmother and following up with Paediatric clinic all the while , due to im a premature baby. My parents always follow up about me and my condition from my grandmother. When im is few months old, my grandmother notice my leg is not active as my brother. My family have no idea what happened to me. Until when I’m at 1 year and 8-month-old, during the PAED follow up, my caregivers voice up to doctor about my legs. Doctor did a quick examination and diagnosed me with Cerebral Palsy. Doctor advised my parents and referred me to Cerebral Palsy specialist clinic. From the moment I was diagnosed as a Cerebral Palsy, my family tried to find out what they could do to help me, and they took me to undergo the therapy training at the local specialist clinic.

I don’t understand the situation around me and why I must do all that training. I am a baby who just wants to play freely without coercion. As my session is once a month, im in learning process and still not familiar with the environment and im afraid of strangers. I keep crying and uncooperative so my session will cut short to less than 10 minutes per session. I really can’t cooperate in undergoing my therapy session. I rebelled and cried badly until I couldn’t continue my therapy session. Until one day, the doctor introduced to my family about Wishesland. I was registered with Wishesland on 11.7.2019. Same to what happened in previous clinic. From my first visit I was cried badly and uncooperative with the teacher. I refused to do all the activities that given to me. I cried all the time but my teacher was very patience and loving, they keep tried to calm and comfort me. They treated me like their own family. Even though I keep crying and don’t want to cooperate, my teachers keep smiling and always say that they love me very much and will help me so that I can play freely and effortlessly just like my brothers. My teachers keep tried to comfort me until I was calm. And finally, I managed to adapt and successfully undergo all the activities that given to me. I was very happy when my teachers and everyone around me cheered and praised me every time I made a progress. I can see eveyone around me love me so much. From what I have been through, now I understand why im need all this training.

Then on 2020, due to MCO I have to postpone my therapy at Wishesland and continue my training at home with my grandmother. During MCO period, my teacher always keeps in touch with my grandma to ask about my progression and guide her in doing home program with me. And when Wishesland resume for the operation on 2021, I show a lot of progresson to my teacher, and they are very happy with my improvement that I am able to walk by myself using walker with effortlessly. Now I can attend my school just like my brothers, I am in progress learning to be independent just like other childrens.

Chai Men You

Success Story from Wishesland Ambassador

Chai Men You

Success Story from Wishesland Ambassador

Chai Men You

Success Story from Wishesland Ambassador

Hello. I am Jarvis Sing. I was born in full-term via SVD with a birth weight of 2.97kg. On Day of life 3, my mother notice that I become less active and brought to hospital by day 4 due to lack of energy and refusal to feed. I admitted to PICU almost 3 months. At that time only my father allowed to come in and visit me because of MCO. During admission, doctor diagnosed me as a Encephalopathic. My final diagnosed was Cerebral Palsy with swallowing incoordination. Currently, I only go to SGH and Clinic Sekama for physiotherapy, which is once a month. But my parent thought that the therapy is still not enough. So, they seek for the doctor advice if there is any other places for them to go. Doctor recommends to my parent to go for Wishesland which it is the centre only for Cerebral Palsy children and many people especially parent of Cerebral Palsy says Wishesland is a good place for therapy and a lot of children has improved.

When I first visit to Wishesland on July 2022, I feel comfortable with the environment of Wishesland. I saw a lot of trees and flowers, which it calms my mind. The teachers also very welcoming us. I still remember one of the Teacher was play with me so that I didn’t cry while assessing. The teacher says that I can sit and walk like other children too. They give us a great motivation that makes me happier and more felt wanted to do therapy as soon as possible. I started my therapy sessions with teachers is on August 2022, I was unable to lift my head and neck up. I also have difficulty to roll my body and sitting. I need full support to do all my daily routine. I continue do at home for my home programme exercise. After 3 months I repetitive do therapy at Wishesland and home, now I can sit with minimal assistant and do many more activities. I also learn to balance myself during sitting and control my head and neck. I love to use “pepet’.

Jarvis Sing

Success Story from Wishesland Ambassador

Jarvis Sing

Success Story from Wishesland Ambassador

Hello. My name is Jonas Epoi Kelvin. I was born on 15 July 2015 and a premature baby with 34 weeks. I was diagnosed hypotonic Cerebral Palsy, Pseudobulbar palsy and weak respiratory since baby. Im using BIPAP support since birth to support my breath. Im also using NG tube for me to drink and eat. Sometimes my mom will give food through my mouth to taste it. For the therapy sessions, I only go to PDK. But still I think the therapy is not enough. So many other parents recommend my parent to go to Wishesland, they said this place is nice for therapy as the environment very comfortable to children and felt like home.

When my family and I first visit to Wishesland on 2020, I felt happy and safe as the environment just felt like home. It was different from I still can’t sit independently, control my head and neck and I cannot to breath independently. I need full assistance in my daily routine, I need depend on BIPAP machines to support my breathing. I attend my therapy session at Wishesland once a week. My teacher teaches me alot of exercise which I can do at home too. Now I am happy that I can breathe without BIPAP support within 2 minutes. I believe one day I can breathe by myself.

Jonas Epoi Kelvin

Success Story from Wishesland Ambassador

Jonas Epoi Kelvin

Success Story from Wishesland Ambassador

Hi, my name is Meryl Addrieanna. I am 11 years 8 months old. I started becoming a Wishesland member since I am at the age of 4 years old. I was diagnosed with diplegic cerebral palsy. Now, both of my leg is getting stronger day by day. I’m so happy and grateful now that I am able to balance myself when walking and standing. My knee getting stronger to support myself during walking and standing activity. Now, I am learning to run and jump without falling down. I know I can and I will. I love my body, I love my leg. Thank you, I love you.

Meryl Addrieanna

Success Story from Wishesland Ambassador

Hi, my name is Mohammad Uthman Fudail, I am 6 years 10 months old. I started becoming a Wishesland member since I am 11 months old. I was diagnosed with cerebral palsy and Dandy walker. Now my both lower limbs are getting stronger day by day. I am so happy and grateful now that I am able to sit and balancing myself sitting on wobble board. Now I am happy I can overcome my fear. I know I can and I will. I love my body, I love my legs. Thank you, I love you.

Mohammad Uthman Fudail

Success Story from Wishesland Ambassador